Update on Levi

31 Dec

                It has been a long month filled with trips to Akron.  Each trip has narrowed down the diagnosis and we finally have something certain.  Because Levi’s heart checked out Ok, the doctors believe this is an isolated case of agenesis of the corpus callosum.  The corpus callosum is the main connection between the two hemispheres of the brain.  This is also related to the enlarged ventricles in the brain.  It sounds scary at first, but they have said that many times other smaller connections of the brain make up for this.  A week ago they told us they would be meeting to discuss this case and so we waited to hear from them.  We returned to Akron yesterday for another ultrasound and the ventricles had only slightly enlarged.  Last time they checked the ventricles measured 16-17 mm and yesterday they were a solid 17.  This is great compared to the growth that has been happening.  The doctor we met with was great.  He actually set up the first ultrasound in the state of Ohio. 

                He told us that he recommended delivery in Akron.  So now we have to make a choice as to which hospital Amy will deliver in, Suma or Akron City.  Both of these hospitals have level 2 nurseries run by Akron Children’s so they may not be any need to transfer Levi unless they find something wrong.  When he is born they will do an ultrasound of his head and probably another MRI to see if there are any other abnormalities with the brain.  All we can do is continue to pray while we wait.  As far as a long term prognosis, they are not sure.  We have been told to be cautiously optimistic.  If there are no other defects, Levi could live and learn like we would hope.   There are many people walking around today with agenesis of the corpus callosum and they have no idea, because the technology wasn’t there to diagnosis.  More good news is that we will not have to go back to Akron until the end of January.  During this visit they will officially transfer all care to Akron and we will begin only traveling there, instead of going to Mansfield also. 

                On the other end of the spectrum, we were less than a quarter mile from home when we hit black ice on the way to Akron.  We lost control and our rear end swung around and hit a car parked on the side of the road.  The gentleman was great and told us to go on to Akron and we could take care of things when we got back.  Everything seemed fine so we went on to Akron.  We got close when the tire that received the impact started to shake.  I pulled over to the side of the road and everything looked fine.  We continued to drive slowly and made it to our appointment on time.  I am thankful to my band directors that taught us early is on time and on time is late.  We made it fine.  The truck is was not able to make it back home.  We called the insurance and they towed the truck to a body shop and sent us a van from Enterprise.  We are waiting to hear what the damage is and how long it will take to fix it.   Until then I get to drive a new little minivan.  Hopefully, it won’t take long. 

                Thank you for all your prayers.  We will continue to keep you updated, but hopefully we will not have anything to report about Levi until our next visit to Akron.  I hope everyone has a wonderful New Year!

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Posted by on December 31, 2010 in Family Life


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