We just met with the doctor and things look good. The ultrasound of the head revealed noting more than they already knew. This is very good. Everything else looks good. At the moment the main concern is getting him to eat. His last good feeding was yesterday at 11 am. They are having Amy pump more to get her milk to come in. If Levi will begin to eat better there is a chance that we all could go home on Monday.
Once Levi is discharged, we will spend a few hours at Akron Children’s. We will go here to meet with the neurologist and have the spinal ultrasound done. The doctor told us thins morning that everything Levi will need from this point will be done as an outpatient and will depend on the consultation with the neurologist.
Thank you for all the calls. I just wanted to let you know that Levi did have an anus. I forgot to mention that with everything else happening. Also, the mass on the spine is what will be looked at during the spinal ultrasound.
As I was sitting here, Amy’s doctor just walked in. She will be release on Monday. The hospital has a program for parents of children in the Special Care unit. As long as Levi is there, we can stay in the same hospital room. This allows Amy to nurse every three hours with less travel time and stress. We are not sure how this program works or how much it will cost, but we will be able to stay with Levi.
We really look for the rest of today and tomorrow to be very slow. The doctors will not be in tomorrow; it will just be the nurse practitioners. Pray that Levi begins to nurse well. This is our next obstacle. We would prefer him to nurse and not take a bottle with formula, but we will do whatever he needs. God has allowed her to nurse all three of the other children, prayerfully he will allow success with Levi also.
I will keep you updated as we know more. We love you, and thank you.